A journey through dementia with mom

5/26/24 My sister leaving

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My sister came to visit for a week and mama so excited to see her. We had a nice week. We worked in the yard, my sister stayed with Mom which allowed me some down time. I got my annual exam and a massage! That was awesome! I was able to get some work done upstairs so that took some stress off of me as well.

The glitch came when my sister left. My sister left on Saturday at noon. Right after she left Mom and I went outside to pick some sticks up in the yard. As we were carrying them to the street, she stopped and started breaking them up and I suggested she leave them long that the city likes to pick up sticks that are longer. She threw the sticks down and yelled,” Stop it stop it stop it! I don’t know what you’re talking about.” Me “I’m sorry .” Mom, ” I don’t know what you want me to do.” Me “You can keep doing what you’re doing.” She picked up the sticks and took them out to the back of the house but walking back to the house she took a wide berth from me about 6 ft. She went off to the right and I sat on the porch and watched her. She came up to the porch but went in a different door away from me. I came inside and she got up from sitting in the library and went out on the front porch. She called Ben talked to him for a few minutes and hung up.

My husband came home for lunch she waved at him and seemed fine. I tried to engage conversation, she would not talk to me. She came inside, went around the dining room table instead of walking beside me. So I looked at her and said, “Mom I’m Shelly your daughter.” She said “No.” I texted my sister and asked her to call Mom and tell her who I am when she was settled at the airport. My sister did call and said,” Mom I had such a great time with you this week, with you and your daughter Shelley who is right there with you.” Mom looked up at me and this relief came over her face. As my sister continued to talk to her and continue to include me by saying, “your daughter, my sister, who is there with you,” mom would touch my shoulder and my back and my arm. Realizing who I was.

After hanging up, mom wanted to write down what happened. So we did. A little later she called her husband. They spoke. She said she wanted to come home. And he says , ‘What does Shelley think about that? Does she need a break?” Now keep in mind, it was discussed and agreed that she was living here permanently, even though SHE thinks it is only a visit. Of course I said, ” We want her to stay with us.”

They talked for a little while. And she hung up. He was telling her how hard things were and that she would be a distraction if she came home. I have mentioned to him that if she starts worrying about him too much she wants to come home to take care of him. That is exactly what she started saying. After a while they hung up.

So today was a tough day. I have to continue to watch her body language and her responses when I’m around. I think when my sister left left and drove off, her brain couldn’t accept her leaving. All week it has been my sister and myself and mom and my husband, Dale. When my sister left, there was a disconnect in mom it’s brain and she could not assimilate that it was just me in the house with her.

So today is Sunday and it is another day. I just gave her her coffee.

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